Everything in my wardrobe

The film in brief

Situation 1 Anne lives independently

Anne (53) shows a friend the contents of her wardrobes, explaining what can be stored in each one.
wat je allemaal kan opruimen.

Situation 2: Anne, clearly older and living with dementia

A caregiver knocks on Anne’s bedroom door. Anne (62) is standing close to the wardrobe pressing herself against the door with her finger held to her lips. She points and gestures toward the wardrobe. The caregiver reassures her and eventually accompanies Anne to breakfast.

All footage is authentic and taken from real-life situations.

Theme

The focus of this material is hallucinations. People with dementia may sometimes see, hear, smell, or feel things that are not actually present. These experiences can be pleasant—for example, hearing beautiful music—but they can also be frightening. In some cases, there may be a trigger for the hallucination.

The case “I am Anne” explores Anne’s life story and the onset of her dementia, including early signs such as getting lost. It also provides important context for the other cases; therefore, it is recommended to watch I am Anne again.

General questions

  1. What do you see, and what stands out to you?
  2. What might be the underlying problem?
  3. What do you notice about the caregiver’s response?
  4. What do you notice about the physical environment?
  5. How can you help Anne?

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In-depth questions

  1. What could be causing Anne’s hallucination?
  2. How does seeing Anne in this situation affect you?
  3. How would you respond in this moment?
  4. Do you have similar experiences, and if so, how did you handle them?
  5. How might hallucinations in a person with dementia affect other group members, and how could you explain this to them?

There are several ways to respond when a person with dementia experiences hallucinations. These hallucinations result from changes in the brain and are part of dementia-related behavioral changes. It is important to remain calm and avoid being drawn into fear. In some situations, talking about the hallucination can be helpful.

What works—and what does not—varies from person to person and from moment to moment. The situation is often unpredictable. As a professional or informal caregiver, you are the one who must find the most appropriate response. In doing so, you will continually encounter questions, many of which have ethical implications.

Would you like to learn more about dealing with hallucinations? 'The caregiver’s companion to intellectual disabilities and dementia: 100 real-life questions and answers' contains 100 practical questions and answers. will be released soon. for now, it is available in Dutch.

Statements for Discussion

  1. If a person with an intellectual disability experiences hallucinations, this is an indication of dementia.
  2. Hallucinations cause anxiety not only for the people experiencing them, but also for those around them.
  3. Going along with the hallucination is always the best response.
  4. It is important to explain to the person with an intellectual disability that the hallucination is not real.
  5. Hallucinations in people with dementia always lead to anxiety.